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Now in a fully revised and updated fourth edition, this book remains the most comprehensive resource on Prader-Willi syndrome (PWS) available on the market. There have been significant changes in the diagnosis, clinical care and treatment of PWS since the previous edition was published in 2006, and more thorough information on understanding the cause and diagnosis of the condition, along with clinical presentation and findings with natural history data now available. The book is divided into three thematic sections. Part One discusses the genetics, diagnosis, research and overview of PWS, including current laboratory testing. The medical physiology and treatment of PWS comprise Part Two, covering the GI system, obesity as well as the use of growth hormone. Part Three, the largest section, presents a wide-ranging, multidisciplinary management approach to PWS, attending to the many manifestations of the condition. Topics here include neurodevelopmental aspects, speech and language disorders, motor issues, psychological and behavioral management, educational and transitional considerations, vocational training and residential care, and advocacy for both school discipline and sexuality. Syndrome-specific growth charts, benefits eligibility information and additional resources are included in helpful appendices. Timely and well-crafted, this latest edition of Management of Prader-Willi Syndrome remains the gold standard for clinicians and health care providers working with patients diagnosed with this rare obesity-related genetic disorder.
Management of Prader-Willi Syndrome brings together the contributions of professionals with considerable expertise in diagnosis and management of PWS. Clinical, social, family, and community issues are explored and management strategies identified. The text presents historical, medical, and genetic information to orient the reader. The major portion deals with pragmatic guidelines, rather than research and diagnosis, and is directed to health and educational specialists in academic, clinical, and community settings. This manual is endorsed by The Prader-Willi Syndrome Association, which is recognized world-wide.
Fast and easy to complete, The Capute Scales requires minimal equipment and can be administered in just 6 to 20 minutes. Because the tests measure functioning across two streams of development, they help clinicians distinguish between global developmental delays and specific areas of concern. Created for clinical settings, The Capute Scales is an effective and efficient assessment tool for general pediatric practice and for specialists such as developmental pediatricians, speech-language pathologists, and occupational therapists. This standardized instrument will assist clinicians in making developmental diagnoses, counseling families, and guiding them to appropriate intervention services. The complete system includes - Cognitive Adaptive Test (CAT), 57 items focused on visual-motor functioning - Clinical Linguistic & Auditory Milestone Scale (CLAMS), 43 items focused on expressive and receptive language development - Manual with an explanation of the scales' development, Spanish and Russian score sheet translations, guidelines on administration and scoring, an overview of clinical and research use, and information on standardization of the scales and their use in other languages - 4-page Scoring Sheet - Test Kit, packed in a tote bag, with the standardized materials required to conduct the assessment Kit includes - one laminated card - one notepad - two jumbo crayons - one cloth - one form board - triangle, circle, and square shape for form board - one Plexiglas pane - one pegboard with six pegs - one dowel - one cup - one jar - 10 1-inch blocks - one plastic ring - one bell - tote bag
Fast and easy to complete, The Capute Scales requires minimal
equipment and can be administered in just 6 to 20 minutes. Because
the tests measure functioning across two streams of development,
they help clinicians distinguish between global developmental
delays and specific areas of concern. Created for clinical
settings, The Capute Scales is an effective and efficient
assessment tool for general pediatric practice and for specialists
such as developmental pediatricians, speech-language pathologists,
and occupational therapists. This standardized instrument will
assist clinicians in making developmental diagnoses, counseling
families, and guiding them to appropriate intervention services.
The complete system includes
More than 4,000 disability terms, with the clearest, most accurate definitions--that's what professionals will get in this third edition of the bestselling dictionary, now fully updated and expanded just in time for its 15th anniversary. The go-to disability reference since its first edition was published in 1996, this comprehensive dictionary gives readers jargon-free definitions of disorders, diagnoses, interventions, programs, anatomical terms, medical equipment, behaviors, assistive technologies, and more--all the terms they'll need to know to work effectively with children, adults, and other professionals. A diverse team of experts carefully reviewed and revised every entry in this new edition, making each definition as clear, user friendly, and up to date as possible. Readers will get
The ultimate reference for anyone who cares for or works with individuals with developmental disabilities, this dictionary is also the perfect complement to any course on disability. Professionals from a wide range of disciplines will have the fast, reliable information they need to provide effective services to children and families.
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